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	<title>Trevor&#039;s Trek Foundation</title>
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	<description>Raising public awareness of childhood cancer</description>
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		<title>Ada County Paramedics</title>
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		<pubDate>Tue, 12 Jul 2011 18:58:16 +0000</pubDate>
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<p>&nbsp;</p>
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		<title>Congress Disease Clusters &#8211; CSPAN</title>
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		<pubDate>Tue, 12 Jul 2011 18:51:43 +0000</pubDate>
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		<title>Erin Brockovich News</title>
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		<pubDate>Tue, 12 Jul 2011 18:44:43 +0000</pubDate>
		<dc:creator>admin</dc:creator>
				<category><![CDATA[Latest News]]></category>
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		<category><![CDATA[Erin Brockovich]]></category>

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		<description><![CDATA[Erin Brockovich April 17, 2011 By admin Erin Brockovich: Recently News about is Erin Brockovich in this page. A disease cluster is an unusual amount of wellness issues, specified reports of cancer, sorted conjointly in a time and position, agreeing to the Centers for Disease Control. Brockovich, who came to prominence investigation the prevalence of [...]]]></description>
			<content:encoded><![CDATA[<h1>Erin Brockovich</h1>
<div>
<div>April 17, 2011</div>
<p>By <a title="Posts by admin" rel="author" href="http://www.newsusaworld.com/author/admin">admin</a></p>
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<p><a title="Erin Brockovich" href="http://www.newsusaworld.com/erin-brockovich.html"><strong>Erin Brockovich</strong></a>: Recently News about is Erin Brockovich  in this page. A disease cluster is an unusual amount of wellness  issues, specified reports of cancer, sorted conjointly in a time and  position, agreeing to the Centers  for Disease Control. Brockovich, who came to prominence investigation  the prevalence of cancer cases in Hinkley, California, said she’s become  an intimate describing agency  for those who worry that something in their contiguous surroundings is a  wellness hazard. Thousands of Americans link me monthly asking for  supporter and telling me about unexplained diseases in their  neighborhoods or on their streets,” Brockovich told the Senate  surroundings and world acts Committee. She offered a map of  the U.S. and Canada she said she collectively by plotting these calls  geographically, showing calls from almost all U.S.A. Nation and a lot  Canadian provinces. This isn’t a technological sample but simply a map of  people who are reaching to me for help because they’re concerned that  environmental pollution in their profession has made them ill,” <strong><a title="Erin Brockovich" href="http://www.newsusaworld.com/erin-brockovich.html"><strong>Erin Brockovich</strong></a></strong> said Sen. Barbara Boxer, a California Democrat who chairs the commission, co-sponsored a account meant to addition coordination, transparency and answerability when government agency address potential disease clusters.  Boxer said United States. Childhood cancer rates have expanded by more  than twenty percent from 1975 direct 2007, and that while the exact  causes isn’t always known, “2 often-discussed factors are genetics and  environmental causes. The bill, also co-sponsored by Sen. Mike Crapo, an  Idaho Republican, is known as Trevor’s Law, named for Trevor Schaefer, a  21-year old survivor of brain cancer from Boise, Idaho.</p>
<div id="attachment_3778"><a href="http://www.newsusaworld.com/wp-content/uploads/2011/04/Julia_Roberts_Erin_Brockovich_25.jpg"><img title="Erin Brockovich" src="http://www.newsusaworld.com/wp-content/uploads/2011/04/Julia_Roberts_Erin_Brockovich_25.jpg" alt="Erin Brockovich" width="210" height="256" /></a>Erin Brockovich&nbsp;</p>
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<p>Schaefer, who testified at the Senate audience, and his family  have made a base that has been fighting for best investigations into the  reasons of cancer clusters. A study by the natural resource Defense Council and the National Disease Clusters Alliance described forty-two disease clusters in 13 U.S.A. Nations, showing incidence of numerous types of cancer, birth defects and other chronic sicknesses</p>
<p><a href="http://www.newsusaworld.com/erin-brockovich.html">original post</a></p>
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		<title>Meet Trevor Schaefer</title>
		<link>http://www.trevorstrek.org/news/meet-trevor-schaefer/</link>
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		<pubDate>Tue, 12 Jul 2011 18:41:27 +0000</pubDate>
		<dc:creator>admin</dc:creator>
				<category><![CDATA[Latest News]]></category>
		<category><![CDATA[National News]]></category>

		<guid isPermaLink="false">http://www.trevorstrek.org/?p=872</guid>
		<description><![CDATA[Posted March 29, 2011 in Curbing Pollution, Environmental Justice, Health and the Environment, U.S. Law and Policy Tags: cancer, clusters, disease, takeouttoxics, toxicchemicals, TSCA Over the years I have worked on environmental and public health issues in Washington DC, I have attended many, many hearings.  And I have seen and heard many people testify at [...]]]></description>
			<content:encoded><![CDATA[<p><img src="http://switchboard.nrdc.org/media/photo-drosenberg-contributor.jpg" alt="Daniel Rosenberg" width="68" height="68" /></p>
<p>Posted March 29, 2011 in <a href="http://switchboard.nrdc.org/blogs/issues/curbing_pollution/">Curbing Pollution</a>, <a href="http://switchboard.nrdc.org/blogs/issues/environmental_justice/">Environmental Justice</a>, <a href="http://switchboard.nrdc.org/blogs/issues/health_and_the_environment/">Health and the Environment</a>, <a href="http://switchboard.nrdc.org/blogs/issues/us_law_and_policy/">U.S. Law and Policy</a></p>
<dl>
<dt>Tags:</dt>
<dd><a rel="tag">cancer</a>, <a rel="tag">clusters</a>, <a rel="tag">disease</a>, <a rel="tag">takeouttoxics</a>, <a rel="tag">toxicchemicals</a>, <a rel="tag">TSCA</a></dd>
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<div id="entrybody">
<p>Over the years I have worked on environmental and public  health issues in Washington DC, I have attended many, many hearings.   And I have seen and heard many people testify at these hearings.  Most  people, whatever side or interest they are representing, do a good job.   Very often they are government officials from any number of federal,  state or local agencies or elected offices.  They are frequently  professionals&#8211;typically lawyers, scientists, and academics&#8211;or members  of trade associations. They deliver their testimony in a clear and  concise manner, and are generally prepared to provide responsive and  even helpful or enlightening answers.</p>
<p>But on a couple of occasions I have seen extraordinary, riveting  testimony that completely captivated every Senator or Representative in  attendance, as well as the staff, the public, the press, and anyone else  in the hearing room.  One of those times was when Jerry Ensminger  testified at a hearing about <a href="http://movies.nytimes.com/movie/465304/Semper-Fi-Always-Faithful/overview">the cancer cluster at Camp LeJeune in North Carolina where he lived, and about his nine year old daughter who died of leukemia</a>.</p>
<p>Another of those times was earlier today, when 21-year old Trevor  Schaefer delivered measured but powerful testimony about his own  successful battle with brain cancer – beginning at age 13 – and the need  for Congress to take action to protect children and assist communities  that are potentially affected by disease clusters.</p>
<p>Trevor, who travelled to the nation’s capital from Boise, Idaho,  spoke today at a Senate Environment and Public Works Committee Oversight  hearing on Disease Clusters and Environmental Health.   In a little  more than five minutes, he described his personal experience receiving  cancer treatment at such a young age, how his life has been affected and  may be in the future, and how his experience is an important window on a  widespread problem that affects people in cities and towns all across  the country.   My one sentence summary doesn’t begin to do it justice.  I  highly recommend you take a few minutes to <a href="http://epw.senate.gov/public/index.cfm?FuseAction=Hearings.LiveStream&amp;Hearing_id=df802290-802a-23ad-480f-eba51b046c02">watch the testimony for yourself</a>. (it begins at 31:15)</p>
<p>Trevor spoke specifically in support of legislation introduced by the  Committee’s Chair, Barbara Boxer of California, (a Democrat) and her  committee colleague, Michael Crapo of Idaho (a Republican) that would  improve federal coordination and assistance for state and local  governments, and community members that are trying to identify potential  disease clusters or determine the potential causes of such clusters.   It has been referred to as “Trevor’s law” and, after seeing his  testimony from today’s hearing, you’ll know why, and you&#8217;ll want to do  what you can to help it reach the President&#8217;s desk.</p>
<p>Trevor was joined on the witness panel by <a href="http://www.brockovich.com/index.html">Erin Brockovich</a>, yes, <em>the</em> Erin Brockovich, who described the thousands of contacts she receives  every month from people all over the country who are struggling with  striking numbers of illnesses in their communities, and are frustrated  by the lack of an adequate response or assistance from government  agencies.  People know her story, and know that she cares about them.   They turn to her for help when they believe the government can&#8217;t or  won&#8217;t help.   <a href="http://epw.senate.gov/public/index.cfm?FuseAction=Hearings.LiveStream&amp;Hearing_id=df802290-802a-23ad-480f-eba51b046c02">Her testimony</a> was also excellent. (it begins at 40:35)</p>
<p>And my colleague <a href="http://switchboard.nrdc.org/blogs/gsolomon/">Dr. Gina Solomon</a> testified about her professional work and the important societal  benefits that we could reap by more effectively and systematically  investigating potential disease clusters and their causes.  She also  discussed an <a href="http://www.nrdc.org/health/diseaseclusters/">Issue Paper</a> that NRDC released yesterday with the <a href="http://clusteralliance.org/">National Disease Cluster Alliance</a> that documents 42 disease clusters in 13 states, which have either been  confirmed by government agencies or academic researchers, or are under  current investigation by federal, state or local health agencies.  Those  42 cases are just the tip of the iceberg.  And in all of those  communities, and the hundreds of others around the country, people are  experiencing the same pain, suffering, anxiety, fear, and loss that  Trevor described in his own testimony.   You can see Gina’s oral  testimony <a href="http://epw.senate.gov/public/index.cfm?FuseAction=Hearings.LiveStream&amp;Hearing_id=df802290-802a-23ad-480f-eba51b046c02">here</a>, (at 57:11) and read her full written testimony <a href="http://epw.senate.gov/public/index.cfm?FuseAction=Files.View&amp;FileStore_id=4a3096f5-3634-4da8-835a-4e3e3df83a76">here</a>.</p>
<p>Gina explained why Trevor’s Law is needed to help citizens confront the disease clusters in their communities; and <a href="http://www.nrdc.org/health/takeouttoxics.asp">why reform of the Toxic Substances Control Act (TSCA) is needed to ensure the safety of chemicals that are used in products</a> and prevent creation of additional disease clusters in the future.</p>
<p>This was a valuable hearing on an issue that is both important, and,  given all the many issues that Congress is dealing with (or at least  pretending to deal with) easy to ignore.  But those Senators who  attended the hearing paid careful attention to all of the testimony, and  they were serious, thoughtful, and constructive; things that cannot be  taken for granted at congressional hearings.  I think Trevor’s testimony  is something that will be difficult to ignore and, if you witnessed it,  impossible to forget.</p>
<p><a title="Meet Trevor Schaefer" href="http://switchboard.nrdc.org/blogs/drosenberg/meet_trevor_schaefer_riveting.html">original post</a></p>
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		<title>Trevor Schaefer KTVB Trevor&#8217;s Law</title>
		<link>http://www.trevorstrek.org/news/videos/trevor-schaefer-ktvb-trevors-law/</link>
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		<pubDate>Tue, 12 Jul 2011 18:29:07 +0000</pubDate>
		<dc:creator>admin</dc:creator>
				<category><![CDATA[Videos]]></category>

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<p>&nbsp;</p>
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		<title>BREAKING NEWS JUNE  9th 2011.  TREVOR&#8217;S LAW PASSES COMMITTEE &#8211; READ PRESS RELEASE</title>
		<link>http://www.trevorstrek.org/news/breaking-news-june-9th-2011-trevors-law-passes-committee-read-press-release/</link>
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		<pubDate>Fri, 10 Jun 2011 16:26:58 +0000</pubDate>
		<dc:creator>admin</dc:creator>
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		<guid isPermaLink="false">http://www.trevorstrek.org/?p=862</guid>
		<description><![CDATA[U.S. Senate Committee on Environment and Public Works EPW Committee Approves Bipartisan Legislation to Address Disease Clusters Across the United States Washington, DC – Today the Environment and Public Works Committee approved bipartisan legislation, S. 76, the Strengthening Protections for Children and Communities From Disease Clusters Act, to help communities determine whether there is a connection [...]]]></description>
			<content:encoded><![CDATA[<p style="text-align: center;"><strong>U.S. Senate Committee on </strong></p>
<p style="text-align: center;"><strong>Environment and Public Works</strong></p>
<p style="text-align: center;"><strong>EPW Committee Approves Bipartisan Legislation to Address Disease Clusters Across the United States</strong></p>
<p><strong>Washington, DC –</strong> Today the Environment and Public Works Committee approved bipartisan legislation, S. 76, <em>the Strengthening Protections for Children and Communities From Disease Clusters Act,</em> to help communities determine whether there is a connection between “clusters” of cancer, birth defects and other diseases, and contaminants in the surrounding environment.  S. 76, which was introduced in January 2011 by Senators Barbara Boxer (D-CA), Chairman of the Environment and Public Works Committee, and Mike Crapo (R-ID), passed by a vote of 11-7 and will now go to the full Senate for consideration.</p>
<p>Senator Boxer said: <strong>“I am so pleased that the committee has approved this important legislation today.  Children and families in California, and across the United States, deserve to know that resources are available to them when there is any possibility of a potential disease cluster in their community. This is a step forward in investigating and addressing diseases that impact the health and well being of neighborhoods across the country.  I look forward to working with my colleagues from both sides of the aisle as we continue to move this bill through the Senate.”</strong></p>
<p>Senator Crapo said:<strong> “As a two-time cancer survivor, I know that we have much to learn about the causes of cancer.  Through providing resources to affected communities and facilitating a coordinated response between federal, state and local governments, this legislation will help us learn more about disease clusters in our communities.” </strong></p>
<p>Throughout the country, there are communities that experience unexpected increases in the incidence of birth defects, cancer and other diseases. The legislation, S. 76, is designed to:</p>
<p>• Strengthen federal agency coordination and accountability when investigating these potential certain &#8220;clusters&#8221; of disease;<br />
• Increase assistance to areas impacted by potential disease clusters; and<br />
• Authorize federal agencies to form partnerships with states and academic institutions to investigate and help address disease clusters.</p>
<p>S. 76 is supported by the Evangelical Environmental Network and the Trevor&#8217;s Trek Foundation.  This foundation was co-founded by Charlie Smith and Susan Rosser with Trevor Schaefer, who survived after being diagnosed with brain cancer seven years ago at the age of 13. Trevor and his family have worked to raise awareness of disease clusters and their possible links to toxins in the environment, and to help build support for legislation to assist communities experiencing suspected disease clusters.  Trevor testified before the Environment and Public Works Committee on March 29<sup>th</sup> during an oversight hearing on disease clusters and environmental health.</p>
<p><strong>###</strong></p>
<p><strong>Nathan McCray</strong></p>
<p><strong>Majority Staff</strong></p>
<p><strong>U.S. Senate Committee on Environment and Public Works</strong></p>
<p>&nbsp;</p>
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		<title>Trevor Schaeffer KTVB heads to DC</title>
		<link>http://www.trevorstrek.org/news/videos/trevor-schaeffer-ktvb-dc/</link>
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		<pubDate>Thu, 09 Jun 2011 05:34:01 +0000</pubDate>
		<dc:creator>admin</dc:creator>
				<category><![CDATA[Videos]]></category>

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<p>&nbsp;</p>
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		<title>Erin Brockovich Testimony &#8211; Oversight Hearing on Disease Clusters and Environmental Health</title>
		<link>http://www.trevorstrek.org/news/erin-brockovich-testimony-oversight-hearing/</link>
		<comments>http://www.trevorstrek.org/news/erin-brockovich-testimony-oversight-hearing/#comments</comments>
		<pubDate>Thu, 09 Jun 2011 00:56:18 +0000</pubDate>
		<dc:creator>admin</dc:creator>
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		<guid isPermaLink="false">http://www.trevorstrek.org/?p=849</guid>
		<description><![CDATA[Testimony of Erin Brockovich President Brockovich Research &#38; Consulting Before the United States Senate Committee on Environment and Public Works On “Oversight Hearing on Disease Clusters and Environmental Health” &#160; Tuesday, March 29, 2011 Chairman Boxer and distinguished members of the committee: Thank you for the opportunity to testify today on the issues of disease [...]]]></description>
			<content:encoded><![CDATA[<p style="text-align: center;"><strong>Testimony of </strong></p>
<p style="text-align: center;"><strong>Erin Brockovich </strong></p>
<p style="text-align: center;"><strong>President Brockovich Research &amp; Consulting </strong></p>
<p style="text-align: center;"><strong>Before the </strong></p>
<p style="text-align: center;"><strong>United States Senate Committee on Environment and Public Works </strong></p>
<p style="text-align: center;"><strong>On </strong></p>
<p style="text-align: center;"><strong>“Oversight Hearing on Disease Clusters and Environmental Health” </strong></p>
<p>&nbsp;</p>
<p><strong>Tuesday, March 29, 2011 </strong></p>
<p>Chairman Boxer and distinguished members of the committee: Thank you for the opportunity to testify today on the issues of disease clusters and environmental health.</p>
<p>My name is Erin Brockovich, and I am the President of Brockovich Research and Consulting.  As an environmental advocate I respond to requests for help in groundwater contamination complaints in all fifty states.  I am currently working on investigations in California, Texas, Florida, Michigan, New York, New Jersey, Alabama, Louisiana, Illinois, Mississippi and Missouri.  I am also the proud mother of three children, two who are presently serving their country as soldiers in the United States Army; my son Matthew with the Tenth Mountain Division, Fort Drum, New York has deployed to Afghanistan.</p>
<p>Each month I receive 45-60,000 visitors to my website of which thousands contact me personally reporting issues ranging from environmental pollution, cancer and other diseases resulting from contamination of their property and environment, worker injuries and illnesses; and more. These inquiries come from 140 countries.  These people make up whole communities that are witnessing first-hand the harmful health effects exposure to toxic chemicals such as hexavalent chromium has on them and their families. Recently, my colleagues at Environmental Working Group detailed the widespread chromium-6 pollution in our drinking water – an issue that this committee explored earlier this year.</p>
<p>In April 2010, the President’s Cancer Panel declared that the number of cancers caused by toxic chemicals is “grossly underestimated” and warned that Americans face “grievous harm” from largely unregulated chemicals that contaminate air, water and food (President’s Cancer Panel 2010).</p>
<p>These communities – both large and small and in every corner of the United States – are sending out an SOS.  From Cameron, Missouri to Midland, Texas to Champaign, Illinois and unfortunately yet again in Hinkley, California, communities beleaguered by contamination need their elected leaders to listen, and to take action. Approximately 40 million Americans are on private domestic well water; a group of citizens that has fallen off the grid, unaccounted for, when it comes to understanding what might be poisoning them.</p>
<p>Protecting the health of our children should be a top priority, yet the system for investigating and responding to these concerns is inadequate.  That is why I strongly support S. 76, “The Strengthening Protections for Children and Communities from Disease Clusters Act,” also known as Trevor’s Law for this brave young man Trevor Schaefer.</p>
<p>Trevor’s Law will bolster federal efforts to assist communities that are impacted by potential disease clusters and will identify sources of environmental pollutants and toxic substances suspected to cause developmental, reproductive, neurotoxic, carcinogenic and other adverse health effects.</p>
<p>In the United States, 1 in 3 people will develop cancer in his or her lifetime (CDC 2011).  As an advocate for the past twenty years I have reached an undeniable conclusion: there are simply too many cancers in this country and not enough answers.  And that’s all these communities are trying to do – get answers to the most basic questions: why is my son, who was perfectly healthy just months ago, now sick with leukemia? Why does my daughter have two brain tumors at the age of six? And why is the same thing happening to my neighbors’ kids? Mothers and fathers ask me these questions by the hundred every week.</p>
<p>Part of the puzzle that has been missing is that there is not an agency on the ground going door-to-door talking to and identifying residents who may be affected by contamination in their area.  As a result, people have no faith in the federal government to investigate what’s making people sick in their communities, and that is why they turn to me.  But I cannot take the place of a disease registry or an official reporting program.  Trevor’s Law, S.76, however, takes steps to address this problem by strengthening federal coordination with state and local authorities in investigating the potential causes of a disease cluster.  This bill will empower communities to work with these agencies and therefore facilitate investigation and response.</p>
<p>I am not here to play scientist, nor am I here to sling accusations or assign blame. This is not a partisan issue. Gathering the information necessary to take action protective of human health is a long and daunting task, and when it comes to the health of our children, we cannot afford to jump to conclusions. But it’s time for us to stop turning away from these communities. How many childhood brain cancers is enough for us to start getting serious about investigating the potential causes of these illnesses?  We need to be listening to community members’ concerns when they raise their hand and say something is not right in their neighborhood.</p>
<p>You, members of this Committee, carry the voice and the will of those who elected you to serve this country.  I can tell you those voices are crying out for help.  Some of your constituents are fearful, others are frustrated; they all need your help to stay united as a community that is trying to find answers.</p>
<p>This process needs to be transparent; I cannot stress that enough.  Not only does transparency ensure accountability but it also enables a healthy flow of communication between all involved parties, which is crucial in an investigation of a public health issue that in some cases may be linked to industrial pollution.</p>
<p>Trevor’s Law requires the Environmental Protection Agency (EPA) to establish and regularly update a publicly accessible online database that provides communities important information on investigations, associated illnesses and pollutants.  This database would foster transparency.</p>
<p>Another important factor to take into account is that just because people are exposed in one neighborhood or one town does not mean they live there forever.  One of PG&amp;E’s favorite arguments about the cancer rate in Hinkley, California is that it isn’t higher than should be expected.  What they fail to mention – though I do every chance I get – is that there are people who are sick that were exposed to chromium-6 in Hinkley that may have since moved out of Hinkley. If you believe the environment where you live is harming you wouldn’t you move if you have the resources to do so?  I urge all of you and the agencies to explore all tools, including social media, to ensure that all people affected are contacted and brought into the response process – not just those that are still there.</p>
<p>&nbsp;</p>
<p><strong>Better Coordination, Transparency and Accountability is Needed </strong></p>
<p>For my nearly two decades as a consumer advocate I have met and spoken with tens of thousands of Americans who have suffered the consequences when big companies pollute the water or the air in their communities.  And what you and I have known for many years, Chairman Boxer, and what you’ve worked tirelessly on for your nearly 20 years as a Senator, is that the government needs to help these people.</p>
<p>Because of my work and because the government agencies that should be doing it have dropped the ball, in recent years I have become a kind of reporting agency for suspected disease clusters around the country.  Thousands of Americans contact me every month asking for help and telling me about unexplained diseases in their neighborhood or on their streets.  I’ve started to put together a map.  This is not a scientific sampling but simply a map of people who are reaching out to me for help because they are concerned that environmental pollution in their community has made them sick.  I believe this simple map demonstrates we need to do a better job of listening and responding to these communities including the ones I haven’t heard from. (Appendix A)</p>
<p>This is the issue of our time – whether it is pollution in our water, our air or products we use every day.  The government must play a stronger, better role in helping all Americans.  I understand this might not be a popular position in some circles but most of my life has been about taking unpopular stands against big polluters so I’m okay with that.  Madam Chairman, Senator Crapo, I believe that your legislation “The Strengthening Protection for Children and Communities from Disease Clusters Act” will help Americans that desperately need it.  And the bipartisan nature of Trevor’s Law will send a very valuable message that clean air and clean water and healthy communities are not political issues – they are human issues.  American issues.  I will also remind the public that it was a Republican President – President Nixon – that created the Environmental Protection Agency.</p>
<p>We need better coordination among all government agencies and I have major concerns about the Agency for Toxic Substances and Disease Registry’s (ATSDR) efforts to identify and deal with disease clusters.  Because ATSDR doesn’t effectively respond to citizens’ concerns they turn to anyone who will listen, including to me, to report the strange clusters or high numbers of disease in their neighborhoods and towns.  Better coordination among federal agencies that bring different expertise to the table including the Environmental Protection Agency (EPA), ATSDR, Department of Health and Human Services (HHS) and National Institute of Environmental Health Sciences (NIEHS) is necessary and appropriately addressed in S. 76.</p>
<p>It’s also important that the federal government doesn’t just come in, run some tests and leave.  Make no mistake – the federal government must play a key role in identifying and responding to disease clusters because federal agencies have the research, response and enforcement capacity that states and localities often don’t.  But we can’t lose sight of the most important part of any effort to identify and respond to a possible disease cluster – the people themselves.</p>
<p>That’s why I’m pleased to see that this legislation requires EPA to establish and operate Regional Disease Cluster Information and Response Centers and Teams that will, among other steps, provide expertise to the public as well as state and local officials and involve the community in investigations through participatory research initiatives.  Another important piece of the legislation is the establishment of Community Disease Cluster Advisory Committees to provide oversight over investigations and addressing causes and ensure effective community outreach and involvement.  The affected people must and will be a part of these committees.  Any response to a potential disease cluster cannot be considered successful and effective if the affected community is marginalized.</p>
<p>Everyone believes, because of a movie, that I am an environmental activist.  I do care a great deal about the environment but my real work and my greatest challenge is trying to overcome obstacles that end up jeopardizing public health and safety; and to find ways to prevent them in the first place.</p>
<p>I am an advocate for awareness and a person&#8217;s right to know. Often times we don’t think about or understand what is happening to someone else until it affects us personally. Cancer or some chronic disease has touched all of us. And disease does not recognize our political party affiliation.  I am proud to support this bill and am proud that it has bipartisan support.</p>
<p>The time has come for the federal government to step up and provide the expertise and resources only it can.</p>
<p>I commend your leadership Chairman Boxer and Senator Crapo.  We must act now to help these communities who are suffering.</p>
<p>Thank you.</p>
<p><em>Sources: </em></p>
<p>CDC (Centers for Disease Control and Prevention). 2011. Cancer Clusters. Available at: <span style="text-decoration: underline;">http://www.cdc.gov/nceh/clusters/about.htm </span></p>
<p>NDCA (National Disease Clusters Alliance). 2010. Available at: <span style="text-decoration: underline;">http://clusteralliance.org/ </span></p>
<p>President’s Cancer Panel. 2010. Reducing Environmental Cancer Risk. Available at: <span style="text-decoration: underline;">http://deainfo.nci.nih.gov/advisory/pcp/pcp08-09rpt/PCP_Report_08-09_508.pdf </span></p>
<p><a href="http://www.trevorstrek.org/wp-content/uploads/2011/06/Erin-Brockovich-Testimony.pdf">Erin-Brockovich-Testimony</a></p>
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		<title>Do You Live in a Disease Cluster?</title>
		<link>http://www.trevorstrek.org/news/do-you-live-in-a-disease-cluster/</link>
		<comments>http://www.trevorstrek.org/news/do-you-live-in-a-disease-cluster/#comments</comments>
		<pubDate>Thu, 09 Jun 2011 00:48:25 +0000</pubDate>
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				<category><![CDATA[Environment]]></category>
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		<guid isPermaLink="false">http://www.trevorstrek.org/?p=845</guid>
		<description><![CDATA[Do You Live in a Disease Cluster? A report from the National Resources Defense Council underscores the threat of exposure to chemicals in the environment. But you can take steps to protect yourself. By Joanna Poncavage RODALE NEWS, EMMAUS, PA—“The tip of the iceberg” is how reproductive biologist Sarah Janssen describes 42 disease clusters in [...]]]></description>
			<content:encoded><![CDATA[<h2>Do You Live in a Disease Cluster?</h2>
<h3>A report from the National Resources Defense Council  underscores the threat of exposure to chemicals in the environment. But  you can take steps to protect yourself.</h3>
<p>By Joanna Poncavage</p>
<p>RODALE NEWS, EMMAUS, PA—“The tip of the iceberg” is how reproductive  biologist Sarah Janssen describes 42 disease clusters in 13 states where  people are sick with cancer, birth defects, or other chronic illnesses.  Janssen is a senior scientist with the National Resources Defense  Council (NRDC), and a coauthor of the new report, “Health Alert: Disease  Clusters Spotlight the Need to Protect People from Toxic Chemicals.”</p>
<p>Only one of those clusters has been linked to a cause: In Libby,  Montana, asbestos contamination of vermiculite mines resulted in a high  rate of malignant and respiratory diseases. Elsewhere, connections are  less clear. The tiny state of Delaware (nickname: Chemical Capital of  the World) has eight clusters of cancer, but state investigators rarely  looked for chemical exposure or environmental links, according to  Janssen.</p>
<p>“We thought this report would highlight the need for toxics reform  because many of these communities are disproportionately impacted by  chemical contaminants,” says Janssen.</p>
<p>“A lot of these diseases are on the rise. The question is why, and at  the moment we are not doing a very good job of asking that question,”  says Terry Nordbrock, executive director of the National Disease Cluster  Alliance (NDCA, ClusterAlliance.org), also a coauthor of the disease  cluster report.</p>
<p>But attempts to answer that question are in the works. Introduced in  January by Sens. Barbara Boxer (D-Calif.) and Michael Crapo (R-Idaho),  Senate Bill No. 76, &#8220;Strengthening Protections for Children and  Communities From Disease Clusters Act,&#8221; is also known as “Trevor’s Law,”  named for a childhood cancer survivor. &#8220;This bill will make sure the  government agencies are working together, along with the affected  communities. You put data together, and you can really start putting the  puzzle together,&#8221; says Nordbrock.</p>
<p>And in April, Sen. Frank Lautenberg (D-N.J.) introduced the Safe  Chemicals Act, a bill to reform the 1976 Toxic Substances Control Act.  In spite of this 35-year-old law, only about 200 of the 84,000 chemicals  in commerce today have been tested for safety. Reform of the law would  shift the burden of proof for safety from the U.S. Environmental  Protection Agency (EPA) to the chemical industry.</p>
<p><strong>How to Protect Yourself</strong></p>
<p>The NRDC and the NDCA plan to identify additional disease clusters  investigated or confirmed since 1976. In the meantime, to see if you’re  living in an area at risk, see the <a href="http://www.nrdc.org/health/diseaseclusters/files/diseaseclusters" target="_blank"> disease cluster report</a>, or the NDCA’s <a href="http://clusteralliance.org/clusters/" target="_blank">disease cluster and hotspot map</a>.</p>
<p>“Whether you live in a disease cluster area or not, bio-monitoring  has been showing that even newborn babies in a non-polluted area have  200 different contaminants in their bodies,” says Nordbrock.  Here are  some other ways to take action against unhealthy chemical exposure,  whether from large-scale contamination or small, everyday sources:</p>
<p>• <strong>Assess your area.</strong> To find out what might be toxic in your backyard, visit the EPA’s <a href="http://www.epa.gov/tri/" target="_blank">Toxic Release Inventory Program</a>, and search by zip code for industries or facilities reporting release or management of toxic chemicals. The EPA’s <a href="http://www.epa.gov/superfund/sites/" target="_blank">Superfund Sites Where You Live</a> page lists thousands of locations of uncontrolled hazardous waste and their clean-up progress.</p>
<p>• <strong>Make healthy choices. </strong>Entire books have been written about <a href="http://www.rodale.com/slow-death-rubber-duck">everyday chemical exposure</a>,  and how to protect yourself and your family from toxins that are  finding their way into your bodies, but strategies are similar: Choosing  <a href="http://www.rodale.com/presidents-cancer-panel">organic food</a> whenever possible can reduce the load of pesticides in your body. A filter can remove chemicals from your <a href="http://www.rodale.com/shower-water-filter">household water</a>. Air filters, including better <a href="http://www.rodale.com/summertime-indoor-air-quality">air-conditioner filters</a>, and more frequent dusting and <a href="http://www.rodale.com/good-vacuum-cleaners">vacuuming</a> will reduce particulate-borne contaminants in your home, especially if  you live close to a freeway or refinery. Low-VOC (volatile organic  compounds) paint is always advised to improve indoor air quality.</p>
<p>• <strong>Kick toxic chemicals out of the house.</strong> For more on chemicals used in everyday products, and how to avoid toxic chemicals at home, at work or in schools, visit the <a href="http://www.nrdc.org/living" target="_blank">NRDC’s Smarter Living pages</a>. Create your own <a href="http://www.rodale.com/natural-cleaning-recipes">green cleaners</a> so you can keep your home clean without adding to your body&#8217;s chemical load. Not sure where to start? See our stories <a href="http://www.rodale.com/chemicals-home">5 Household Toxins You Should Banish from Your Home</a> and <a href="http://www.rodale.com/household-toxins">7 More Household Toxins You Should Banish from Your Home</a> for suggestions.</p>
<p>• <strong>Cut back on plastics.</strong> Harmful chemicals like  phthalates and BPA can leach into your food and beverage, so use  non-plastic containers for food storage. Never heat any food or drink in  plastic (that includes microwave meals with plastic packaging). It&#8217;s  impossible to avoid all plastic—even we couldn’t stay entirely <a href="http://www.rodale.com/plastic-free">plastic free</a>—but eliminating unnecessary plastic makes good sense.</p>
<p>• <strong>Demand a change.</strong> Cofounded by the NDCA, <a href="http://www.saferchemicals.org/" target="_blank">Safer Chemicals Healthy Families</a> offers more health tips, and ways to help promote toxic-chemical  reforms, including contacting legislators and congressmen. “Don’t be shy  about contacting members of both parties,” says Nordbrock.</p>
<p><a href="http://www.rodale.com/chemical-exposure-0?page=0%2C0">source</a></p>
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		<title>Ty Ulmer</title>
		<link>http://www.trevorstrek.org/stories/ty-ulmer/</link>
		<comments>http://www.trevorstrek.org/stories/ty-ulmer/#comments</comments>
		<pubDate>Mon, 02 May 2011 18:13:29 +0000</pubDate>
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		<guid isPermaLink="false">http://www.trevorstrek.org/?p=799</guid>
		<description><![CDATA[My name is Kim, I live in Boise, Idaho and I am the mother of a Cancer Survivor. On September 11, 2008 Ty was diagnosed with Osteosarcoma in his right Tibia, Ty was 13 at the time. Of course this was a shock for all of us. We were living in Idaho at Mountain Home [...]]]></description>
			<content:encoded><![CDATA[<p>My name is Kim, I live in Boise, Idaho and I am the mother of a Cancer Survivor. On September 11, 2008 Ty was diagnosed with Osteosarcoma in his right Tibia, Ty was 13 at the time. Of course this was a shock for all of us. We were living in Idaho at Mountain Home on the Air Force Base. Fortunately we caught it early when we noticed the bump on his leg. A few months into treatment Ty had to decide what type of surgery he would have to remove the tumor. Ty was treated at Primary Children&#8217;s Hospital in Salt Lake City, Utah with Dr. Randall. Ty chose to have his leg amputated over limb salvage surgery. He knew that there were risks of other complications that went with replacing his tibia and knee and many other surgeries that he was just not willing to put himself through.</p>
<p>On January 22, 2009 Ty became an amputee along with being a cancer patient. His treatment and recovery went rather smoothly. He had it a lot easier than most kids who go through cancer treatment. He never had to have a blood transfusion in the 10 months of chemo, nor did he need to have platelets or be admitted to the hospital for anything other than chemo. Ty was known around the hospital as &#8221; the kid with the funny shirts.&#8221; He kept a sense of humor about his situation no matter how he was feeling or what he was going through. Ty always found a way to make people laugh and to laugh a little himself.  Ty finished chemo July of 2009 and is cancer free.</p>
<p>I like to think things happen for a reason and for some reason this past week &#8221; Trevor&#8217;s Trek Foundation&#8221; had been brought to my attention more than once. I felt compelled to tell my son&#8217;s story after visiting the Trevor&#8217;s Trek website and seeing the great work this foundation is doing on the Children’s Cancer Pavilion at Julia Davis Park in Boise. Thank you for letting me share Ty&#8217;s story.</p>
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